Getting feedback, evaluating and reporting on involvement

Feedback and evaluation of patient involvement in research are essential for conducting high-quality, ethical research that is relevant, transparent, and trusted by patients and the broader community. This lesson aims to provide insights into some of the methods and approaches which can be used to gather this information.

Reflections on impact & evaluation of public involvement

Experienced patient and public contributor Lynn Laidlaw explores some of the complex issues which arise in trying to assess what difference involvement has made (Note: Lynn’s presentation starts at 2:25 and ends at 16:12 minutes on the linked video. The remaining presentations may also be of interest, as they feature other public contributors’ reflections on the impact of coproduction and the work of the Co-production Collective at University College London)

Table of Contents

Further Reading

Introductory

Impact and Evaluation
Describes the value of learning from experience when carrying out involvement, while recognising that evaluation is not simple, with links to some resources including the GRIPP-2 checklist, from Applied Research Collaboration (ARC) Kent, Surrey and Sussex

Other resources

Introductory

Capturing Impact: articulating the ‘why’ and ‘how’ of public involvement
From NIHR, this explores why evaluating involvement might be useful and what ‘impact’ might mean, with examples

Introductory

Feedback from Researchers to PPI Contributors
Advice from Centre for Research in Public Health and Community Care on feedback to public contributors

Introductory

Patient and public involvement impact log
A patient and public involvement (PPI) impact log from People in Health West of England aims to improve PPI practices through regular reflection, learning and feedback