What is involvement, and why does it matter in research?

Introductory

This lesson aims to provide you with a brief introduction to PPI in research and provide a context for the rest of this unit. Depending on your role and experience, you may wish to skip this lesson.

ARC South London Patient, Service User, Carer and Public Involvement Coordinator Savi Hensman outlines what involvement is, why it matters and the meaning of some terms which are often used

Table of Contents

Resources

Introductory

Briefing notes for researchers – public involvement in NHS, health and social care research
This guidance explains the different ways that members of the public are involved in research. Aimed at researchers, it can help you to plan, resource and support public involvement in research.

Further reading

Introductory

NIHR A Researchers Guide to PPI
This guide is intended for people who are interested in involvement, have begun to involve patients or members of the public and want to learn more, have questions about involvement, or are interested in reading a comprehensive overview of the subject based on the experiences of those who are already involved or involving.
4pi National Involvement Standards
A framework for the involvement of service users and carers, developed by the National Service User Network – in own care, in communities, in service delivery and evaluation and in organisational governance and strategy.