Patient and Public Involvement in Research – Introductory level

Introductory

Welcome to our short module on an introduction to Patient and Public Involvement (PPI) in research. This is an introductory module to PPI, aimed at anyone who is interested in learning more about this topic (including non-researchers and public contributors).

Throughout this module we include short videos to help you understand the importance of PPI in research as well as different approaches you can use. You will also find links to other resources and useful reading content to help consolidate your learning.

This module is to be taken in your own time to help you build your knowledge of involving and engaging with patients and the public. We will also organise a workshop every few months that you are welcome to attend where we can discuss your learning and work through case studies.

Learning objectives

    1. To understand the importance and benefits of patient and public involvement in health and care research
    2. To recognise the different levels of patient and public involvement in research
    3. Learn practical approaches and tools for effectively engaging patients and the public as partners in research
    4. Gain awareness of resources and training opportunities to further develop patient and public involvement skills

 

In this video, ARC South London Patient, Service User, Carer and Public Involvement Coordinator Savi Hensman provides an introduction to PPI in research and how knowing more about when, whom and how to effectively involve people can be beneficial in research.

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What is involvement, and why does it matter in research?

This lesson aims to provide you with a brief introduction to PPI in research and provide a context for the rest of this unit. Depending on your role and experience, you may wish to skip this lesson.

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Deepening understanding of research for public contributors

This lesson aims to provide you with a brief introduction to health and care research and provide a context for the rest of this unit, including details on peer and participatory research methods. It may be helpful for both those developing their own knowledge and skills and anyone supporting others to do so. Depending on your role and experience, you may wish to skip this lesson.

You may also be interested in the ‘introduction to research methods’ unit.

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Involvement and Equality Diversity and Inclusion (EDI) in research

This lesson explores the parallels between involvement and Equality, Diversity and Inclusion (EDI) in research.
You may also be interested in the 'Equality, Diversity and Inclusion' unit.

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Payment and budgeting/other resources for involvement

This lesson aims to provide an introduction to budgeting for patient involvement in research to ensure that that patients are adequately supported, compensated, and appreciated for their contributions.

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Co-applicants in research

When using the term 'co-applicant' we mean an individual who is involved in the development of a funding application and, if funded, has some responsibility as part of the team for the management and/or delivery of the study. Public co-applicants can be valuable members of the research team, having an input into the development of the grant application and ensuring that the study remains centred on patients’ needs.

In this lesson we will explore how to embed and support co-applicants in research.

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Getting feedback, evaluating and reporting on involvement

Feedback and evaluation of patient involvement in research are essential for conducting high-quality, ethical research that is relevant, transparent, and trusted by patients and the broader community. This lesson aims to provide insights into some of the methods and approaches which can be used to gather this information.

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Course Summary

Key Terms

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Main resources

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Introductory

NIHR Resources to support involvement in research

Introductory

Briefing notes for researchers – public involvement in NHS, health and social care research
This guidance explains the different ways that members of the public are involved in research. Aimed at researchers, it can help you to plan, resource and support public involvement in research.

Other resources

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Introductory

NIHR A Researchers Guide to PPI
This guide is intended for people who are interested in involvement, have begun to involve patients or members of the public and want to learn more, have questions about involvement, or are interested in reading a comprehensive overview of the subject based on the experiences of those who are already involved or involving.
4pi National Involvement Standards
A framework for the involvement of service users and carers, developed by the National Service User Network – in own care, in communities, in service delivery and evaluation and in organisational governance and strategy.
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